Skip navigation.

Join Rehabdata Connection!

monthly alerts!

Resources for Specific Disabilities

Jump to other topics

Alphabetically by condition


Alzheimer's Association (AA)
24/7 Nationwide Contact Center
Toll Free: 800/272-3900
Locate a Local Chapter:


American Amputee Foundation (AAF)
Empowering amputees, their families, and care providers to make informed decisions by providing them information, referral, peer counseling, self-help literature, and education.
Phone: 501/666-2523, Monday through Friday from 8 a.m. until 5 p.m.
AAF National Resource Directory:

Amputee Coalition of America (ACA)
Toll Free:  888/267-5669, 865-524-8772 (V), 865-525-4512 (TTY)
National Limb Loss Information Center Contact Form:

National Amputation Foundation (NAF)
Phone:  516/887-3600


Autism Society of America (ASA)
Toll Free:  800/328-8476, 301/657-0881
Locate a Local Chapter:

Autoimmune Disorders/Chronic (Chronic Fatigue, Lupus, etc.)

American Autoimmune Related Diseases Association, Inc. (AARDA)
Toll Free: 800/598-4668

Chronic Fatigue and Immune Dysfunction Syndrome
Association of America (CFIDS)

Phone:  704/365-2343

Crohn’s & Colitis Foundation of America (CCFA)
Toll Free:  800/932-2423
Locate a Local Chapter:

Fibromyalgia Health Center through WebMD

Fibromyalgia Network (FN)
Toll Free: 800/853-2929

Lupus Foundation of America, Inc. (LFA)
Toll Free:  800/558-0121 (English), 800/558-0231 (Spanish), 202/349-1155,
Monday through Friday from 8:30 a.m. until 5 p.m. EST
Locate a Local Chapter:

National Fibromyalgia Association (NFA)
Phone: 714/921-0150
Locate a support group:

National Psoriasis Foundation (NPF)
Toll Free:  800/723-9166, 503/244-7404
Monday through Friday from 8 a.m. until 5 p.m. PST
Locate a Local Affiliate:

Sickle Cell Disease Association of America, Inc. (SCDAA)
Toll Free:  800/421-8453, 410/528-1555
Locate a Local Affiliate:

Blind/Visual Impairment

American Council of the Blind (ACB)
Toll Free:  800/424-8666, 202/467-5081
Locate a Local Affiliate:

American Foundation for the Blind (AFB)
Toll Free:  800/232-5463, 212/502-7600

American Printing House for the Blind, Inc. (APH)
Toll Free Customer Service: 800/223-1839 (U.S. and Canada), 502/895-2405

Braille Institute of America Universal Media Services
Phone: 323/906-3104, 323/663-1111, x1508;
Monday through Friday from 8:30 a.m. until 5 p.m. PST

National Braille Press
Toll Free: 800/548-7323

The National Federation of the Blind (NFB)
Phone: 410/659-9314
Locate a Local Affiliate:

National Library Service for the Blind and Physically Handicapped (NLS) – The Library of Congress
Toll Free:  888/657-7323, 202/707-5100 (V), 202/707-0744 (TTY)
Email (General):, Email (Reference):,
Email (Braille):

Ushers Syndrome Information from the National Institutes of Health (NIH)
For Eye Information call 301/496-5248 or email
For Immediate or Hearing Information
Toll Free: 800/241-1044 (V) or 800/241-1055 (TTY);
Monday through Friday, 8:30 a.m. to 5 p.m., EST

Brain/Head Injury

Brain & Spinal Cord Injury Resource Center was created as a knowledge-base for brain injury and spinal cord injury survivors to help answer questions. 
Toll Free: 800/800-0640

Brain Injury Association of America (BIAA)
Toll Free Family Helpline:  800/444-6443, 703/761-0750
Locate a Local Chapter:
State Affiliate Information:

Brain Injury Resource Center
Phone: 206/621-8558

Center for Neuro Skills TBI Resource Guide
Toll Free: 800/992-4994

International Brain Injury Association (IBAA)
Phone: 703/960-6500

National Resource Center for Traumatic Brain Injury

Traumatic Brain Injury Resource Directory (TBIRD)
Produced by the Rehabilitation Research Center for TBI and SCI


American Cancer Society (ACS)
Toll Free: 800/227-2345 (V), 866/228-4327 (TTY)

American Institute for Cancer Research (AICR)
AICR also maintains a "Nutrition Hotline" available through their toll-free service.
Toll Free: 800/843-8114, 202/328-7744

Association of Cancer Online Resources (ACOR)

Cancer Hope Network (CHN)
Toll Free: 877/467-3638, 908/879-4039

Toll Free: 800/813-4673, 212/712-8400

National Cancer Institute - Cancer Information Service
Toll Free: 800/422-6237

Cerebral Palsy

United Cerebral Palsy (UCP)
Toll Free:  800/872-5827, 202/776-0406 (V), 202/973-7197 (TTY)

Deaf/Hard of Hearing

American Speech Language Hearing Association (ASHA)
Toll Free Professionals/Students:  800/498-2071 (V), 301/897-5700 (TTY)
Toll Free Public:  800/638-8255, 8:30 a.m. until 5 p.m. EST

Hearing Loss Association of America (HLAA)
Phone:  301/657-2248 (V), 301/657-2249 (TTY)
Locate a Local Chapter:

National Association of the Deaf  (NAD)
Phone:  301/587-1788 (V), 301/587-1789 (TTY)
Locate a Local Chapter:

National Institute on Deafness and Other Communication Disorders (NICHD)
Toll Free Information Line:  800/241-1044 (V), 800/241-1055 (TTY),
Monday through Friday from 8:30 a.m. until 5 p.m. EST

Developmental Disabilities

The Arc of the United States (ARC) – Developmental Disabilities
Phone:  301/565-3842
Locate a Local Chapter:

National Dissemination Center for Children with Disabilities (NICHCY)
Toll Free:  800/695-0285 (V/TTY)
Resources by State:

National Down Syndrome Society (NDSS)
Toll Free:  800/221-4602, 212/460-9330, 9 a.m. until 5 p.m. EST
Locate a Local Affiliate:

See also Developmental Disabilities


American Diabetes Association (ADA)
Toll Free:  800/342-2383,
Monday through Friday from 8:30 a.m. until 8 p.m. EST
Locate a Local Chapter:

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Phone:  301/496-3583

Eating Disorders

National Eating Disorders Association (NEDA)
Toll Free Information and Referral Line:  800/931-2237
Help Line Hours:  M (11a-3p), Tu (8:30a-5p), W (8:30a-4:30p), Th (8:30a-5p), F (8:30a-5p) PST


See also Aging

American Association of Retired Persons (AARP) – Aging and Elderly
Toll Free:  888/687-2277,
Monday through Friday from 7 a.m. until 12 midnight EST


Epilepsy Foundation (EF)
Toll Free:  800/332-1000
Locate a Local Chapter:

Genetic Disorders

Genetic Alliance
Phone: 202/966-5557, 9am - 6pm EST

Genetic and Rare Diseases Information Center (GARD)
Sponsored by NIH's Office of Rare Diseases and the National Human Genome Research Institute
Toll Free:  888/205-2311 (V), 888/205-3223 (TTY)
Contact Information:

HIV/AIDS and STD Information

CDC-INFO formerly CDC National AIDS Hotline
Toll Free:  800/232-4636 (V), 888/232-6348 (TTY)
24/7 information line that offers anonymous, confidential HIV/AIDS information to the American public in English and Spanish.
The National Center for HIV, STD, and TB Prevention

Huntington Disease

Huntington’s Disease Society of America (HDSA)
Toll Free:  800/345-4372, 212/242-1968
Locate a Local Chapter:

Learning Disabilities

Attention Deficit Disorder Association (ADDA)
ADDA provides information, resources and networking to adults with AD/HD and to the professionals who work with them.  Focus on diagnosing, treatments, strategies and techniques for helping adults with AD/HD lead better lives.
Phone:  484/945-2101
Locate a Local Support Group:

Children and Adults with
Attention Deficit/Hyperactivity Disorder (CHADD)

Improving the lives of people affected by AD/HD through collaborative leadership, advocacy, research, education and support.
Toll Free: 800/233-4050

Learning Disabilities Association of America (LDA)
Toll Free:  888/300-6710, 412/341-1515
Local a Local Chapter:

Learning Disability Resources from LD Online

National Center on Learning Disabilities (NCLD)
Toll Free: 888/575-7373, 212/545-7510

National Institute for Literacy
The National Institute for Literacy, a federal agency, provides leadership on literacy issues, including the improvement of reading instruction for children, youth, and adults. Toll Free: 800/228-8813
America's Literacy Directory: Programs for Learning Disabilities

National Resource Center on AD/HD
A program of CHADD, the NRC is clearinghouse for science-based information about all aspects of attention-deficit/hyperactivity disorder.

Lou Gehrig’s Disease (ALS)

ALS Association (ALSA) – Amyotrophic Lateral Sclerosis
aka Lou Gehrig’s Disease

Toll Free:  800/782-4747, 818/880-9007
Contact ALSA:
Locate a Local Chapter:

Mental Illness/Mental Health

See also Mental Health and Mental Illness

Mental Health America (formerly the National Mental Health Association)
Toll Free Mental Health Resource Center: 
800/969-6642 (V), 800/433-5959 (TTY)
The Resource Center is available Monday through Friday from 9:00 am until 5:00 p.m. EST
If you need immediate help call the National Hope line Network 800/784-2433 to reach a 24-hour crisis center in your area.
Phone: 703/684-7722
Locate a State Affiliate:

National Alliance for Mentally Ill (NAMI)
Toll Free Information Helpline:  800/950-6264, 703/524-7600 (V),
703/516-7227 (TTY)
Monday through Friday from 10 a.m. until 6 p.m. EST

Locate a Local Chapter:

Multiple Sclerosis

Multiple Sclerosis Foundation (MSF)
Toll Free MS Helpline:  888/679-6287, 9 a.m. until 7 p.m. EST
Phone: 954/776-6805
Locate a Local Support Group:

National Multiple Sclerosis Society (NMSS)
Toll Free:  800/344-4867
Locate a Local Chapter:

Muscular Dystrophy

Muscular Dystrophy Association (MDA)
Toll Free:  800/344-4863, 520/529-2000
Locate a Local Chapter:

Musculoskeletal Diseases

National Institute of Arthritis and
Musculoskeletal and Skin Diseases (NIAMS)

Toll Free:  877/226-4267, 301/495-4484 (V), 301/565-2966 (TTY)

National Institutes of Health Osteoporosis and Related Bone Diseases
National Resource Center (NIH ORBED-NRC)
Toll Free:  800/624-2663, 202/223-0344 (V), 202/466-4315 (TTY)

Neurological Disorders

American TOS Association
Non-profit organization dedicated to Thoracic Outlet Syndrome (TOS) education, research and advocacy.
Toll Free: 888/300-1954, Monday through Friday 9 a.m. until 5 p.m. EST
Find a TOS provider by state:

Locked-In Syndrome
Rehabilitation Institute of Chicago Treatment Program

Phone: 312/238-1000

Locked-In Syndrome Information Page from the National Institute of Neurological Disorders and Stroke (NINDS)

Thoracic Outlet Syndrome Information Page from the National Institute of Neurological Disorders and Stroke (NINDS)

United Brachial Plexus Network, Inc. (UBPN)
UBPN is devoted to providing information, support and leadership for families and those concerned with brachial plexus injuries worldwide. 
Toll Free:  866/877-7004

Paralysis/Spinal Cord Injury (SCI)

American Paraplegia Society (APS)
Phone:  718/803-3782

Christopher and Dana Reeve Paralysis Resource Center (PRC)
PRC is promoting the health and well being of people living with paralysis and their families through comprehensive information resources and referral services.
Toll Free:  800/539-7309
Information Specialists are available 9 a.m. until 8 p.m. EST (English/Spanish)
Free Comprehensive guide to paralysis-related topics in English and Spanish:
Paralysis Resource Guide (PRG)

"Experimental Treatment for SCI: Watch Out!" - From the Spinal Cord Injury Update Winter 2008: 17(1), a product of the Northwest Regional Spinal Cord Injury System.

International Federation for Spina Bifida and Hydrocephalus
Contact Information:

National Spinal Cord Injury Association (NSCIA)
Toll Free Helpline:  800/962-9629, 301/214-4006 (VM)
Locate a Local Chapter:

Spina Bifida Association of America
Toll Free:  800-621-3141
Spina Bifida Clinics by state:

Spinal Cord Injury Network International (SCINI)
Toll Free:  800/548-2673, 707/577-8796
Monday through Thursday from 9 a.m. until 4 p.m.  PST

Transverse Myelitis Association
Phone:  614/766-1806
Support Groups:

Pain Management

American Chronic Pain Association (ACPA)
Toll Free: 800/533-3231, 916/632-0922
Locate a Local Group:

Parkinson Disease

American Parkinson Disease Association (APDA)
Toll Free:  800/223-2732, 800/908-2732 (California), 718/981-8001
Locate a Local Chapter:

National Parkinson Foundation, Inc. (NPF)
Toll Free:  800/327-4545, 305/243-6666
Locate a Local Chapter:

Rare Diseases and Disorders

Genetic and Rare Diseases Information Center (GARD)
Toll Free:  888/205-2311 (V), 888/205-3223 (TTY), 301/519-3194 (International Access)
Monday through Friday from 12 p.m. until 6 p.m. EST
Contact information:

National Organization for Rare Disorders (NORD)
Toll Free:  800/999-6673 (VM only), 203/744-0100 (V), 203/797-9590 (TTY)

Respiratory Ailments

American Lung Association (ALA)
Toll Free:  800/586-4872
American Lung Association Call Center Toll Free: 800/548-8252
Find a Local Chapter:

Cystic Fibrosis Foundation (CFF)
Toll Free:  800/344-4823, 301/951-4422
Locate a Local Chapter:

Stroke/Heart Disease

American Heart Association (AHA)
Toll Free:  800/242-8721
Locate a Local Chapter:

American Stroke Association (ASA)
Toll Free:  888/478-7653
Locate a Local Chapter:
Pediatric stroke:

Internet Stroke Center
Phone: 314/362-3868
Stroke Center Directory:

National Aphasia Association (NAA)
Toll Free:  800/922-4622
Locate an Aphasia Community Group by State:

University of Michigan Aphasia Program
Phone: 734/764-8440

National Institute of Neurological Disorders and Stroke (NINDS)
Toll Free:  800/352-9424, 301/496-5751 (V), 301/468-5981 (TTY)

National Stroke Association (NSA)
Toll Free:  800/787-6537

Pediatric Stroke Network (PSN)

StrokEngine through McGill and Quebec Rehabilitation Research Network
Focuses on stroke rehabilitation and interventions. Information is derived from quality articles, websites and systematic reviews. All have been reviewed using a systematic process.

Substance Abuse

American Council on Alcoholism (ACA)
Toll Free Nationwide Helpline:  800/527-5344
Locate a Local Meeting Group:

National Institute on Alcohol Abuse and Alcoholism (NIAAA)
Contact Form:

Tourette Syndrome

Tourette Syndrome Association, Inc. (TSA)
Toll Free:  888/486-8738, 718/224-2999